7. Ten seniors from India Home participated in Advocacy Day at New York’s City Hall and presented their demands to Council Members.
8. We organized a panel at the 2017 South Asian Americans Leading Together (SAALT) Summit in Washington D.C., joining over 300 activists, organizations and community members from across the country to raise our voice on issues important to South Asian communities.
9. Bangladeshi elders from our Desi Senior Center documented their stories in a memoir writing workshop and had their work printed for the occasion.
By all accounts, Bharti Parikh, 66, has led an exciting life. Her life has been an adventure that took her from a childhood in the tiny village of Patton in Gujarat, India, to a law degree, and fulfilling years in America that included working for the City of New York, being invited to be an artist at President Clinton’s inauguration, and being a singing star on TV.
However, there’s also another sadder, more stressful side to her story, one that is unfortunately shared by so many older adults in America. Bharti Parikh is a caregiver, and has had to be one for years. A senior herself, she continues to care for her husband who has Parkinson’s Disease, and her 88 year old mother. Until May 2017, she was also caring for her aged father who suffered various illnesses that kept him going in and out of hospital.
Her husband cannot use Medicaid, which pays for two-thirds of longterm care in the US, because it requires clients to be impoverished to qualify for benefits. Because of their income and their savings, the couple do not qualify and has “no choice.” Bharti is one of those millions in America who are trying to pay for long term care through savings, private insurance and family resources.
We highlight Bharti’s story as an example of seniors, who, even as they age and grow more frail, are also caring for loved ones who are older and sicker than themselves. Apart from the financial toll, caregiving can be physically and emotionally brutal on the caregiver. Caregivers like Bharti who are singlehandedly managing to take care of loved ones often find themselves alone and isolated.
However, with America’s population aging rapidly, the nation’s 2.2 million home care workers (also known as personal aides or home health aides) can barely meet the demand for their services. Not only is it hard to find care, it’s even harder to find a way to pay for care for more than a few hours a day, she says.
A slight, pretty woman with dark hair and clear skin who looks younger than her years, Bharti is an active member of India Home, always eager to dance the garba or sing traditional songs in her beautiful voice. She spoke to Meera Venugopal at her home in Woodside, Queens, while an aide took her husband for a walk.
Ashvin and Bharti Parikh on an picnic to Bear Mountain with India Home
Caregiver for her husband, parents and in-laws
My husband was fine until 2009. Then he got Parkinsons Disease. Now the disease is at its worst, and he needs someone to take care of him all the time. We can get help with Medicare but only a few hours a day, for three to four days a week. Then after 2-3 weeks, the payments stop. Now I have hired someone to take care of my husband for a few hours a day. That’s a private hire; I pay the aide from my pocket. The person I hired does everything from brushing my husband’s teeth to giving him a shower. He massages him, feeds him, takes him on a walk.
Before I was doing everything for him, and I had no help at all. But the aide I have now for my husband is old too, and he’s not going to be around forever. If I can get someone younger that would be great.
I talked to an agency and a social workers came and said “I’m going to help you. Your case is tragic, so I’m going to do this fast.” Once he went back, I never heard from him again. I’d call him and he refused to come to the phone and talk to me. Someone else called and said, “There are too many people on the waitlist. You won’t get an aide. You should apply for Medicaid.” I can’t apply for Medicaid—I have an income, and my husband had an income, I had a job, plus we have savings. So here we are. My sons are in Ohio, so my daughter, Shephali and son-in-law are living with me. They help me take care of my husband and my late father and my mother.
You know what’s tragic? I used to be a supervisor for New York City in the Human Resources Administration. I know all the rules and regulations on Medicare. I met Mayor Bill de Blasio at a fair in Queens, and he said he would get me a home health aide for my husband and I still didn’t get one. I’m going to go to the Mayor of New York City again and I’ll ask him: What happened to your promise?
Bicycling to college in small town India
I was born in a very small village called Patton, in Gujarat, India. I was the only daughter and my father loved me very much. He let me do anything I wanted. In my town they didn’t allow girls to go to school, even my uncle didn’t want me to study, but my father sent me to college. He didn’t want me walking to college, so I would bike. College was so much fun. I had so many friends. I would dance, take part in singing competitions, go on picnics. I started taking singing lessons, my father encouraged me to do that too.
I got married when I was in my second year of college. My mother-in-law too, let me study, and work. My son was born when I was in my 4th year. I started law school when I my son was five years old. I was going to start working as an advocate when my husband decided to come to the US.
A hole in her son’s heart brought her to America
My second son was born with a very small hole in his heart. The doctors said it may eventually close, but my husband said “I want to go to America because they have advanced treatment there. So we applied and got here.” He’d applied for a visa in 1968, but couldn’t come because he didn’t want to leave his mother alone. He would renew his application every year, and finally he got accepted in 1980. Until then, he was working as a chemical engineer. He was a Gold Medalist in Chemistry and he got the visa in two months! I came in 1981 with the kids and joined him in New York.
Chemical engineer to candy store owner
I started working at the Paul Stewart clothing company in New York almost as soon as I got here. That was my first job in America. Then after a year and half, my husband bought stores, first in the Bronx and then in Yonkers. Both stores had candy, magazines, lotto.
I would also work in the Yonkers store. We worked hard, day and night. Even my kids helped out in the store. We did very well. Then I had my daughter and I quit working in the store. But after 5 months or so of sitting at home, I was bored and applied for a job with the city. They finally called me on a Friday and said I had to come for an interview on Monday. The application was 25-30 pages long and they wanted to know my entire life – my education right from school in India.
In 1989 I started working for the city, for the Human Resources Administration (HRA), and I worked until 2012. I started as a case worker, and then I took the exam and I became a supervisor. We bought our house in 1994 in Woodside, Queens and we’ve been here ever since.
“Mom, you are a superwoman”
Bharti’s award from the Associations of Indians in America for her service during Diwali celebrations at South Sea Port
I would work from 8:00 a.m. to 4:00 p.m. then come home and take care of my kids, mother, father, husband. My parents were not doing so well. I would do everything, cooking, getting the groceries, school supplies, sitting with my kids as they did homework, going to PTA meetings, attending their programs and events. It was hard when the kids were small and I had my mother-in-law with me and she would get sick all the time. Now my kids say, “Mom, you are a superwoman.”
My father also lived with us until May this year. His aide would go home at 4:00 p.m. He was sick all the time. There were a lot of emergencies. I would have to run to the hospital and stay with him all day and all night. He couldn’t be alone because he doesn’t speak English. My niece lived near the hospital and in the morning I would go to her place and I would take a shower and go back to the hospital. For years, I did all this.
Later on my husband got worse and so I couldn’t stay with my father all day and night. But he couldn’t hear very well and he wouldn’t understand what they said, so the hospital would call me. Then my mother would have some problem in her head, and she would fall down again and again. They even did a biopsy, and they didn’t find anything
I had to look after all three. I had no choice. Sometimes my mother was sick, then my husband was sick. It could get very hectic. But in every Emergency, I felt God helped me. Someone somehow came along and helped us.
An invited artist at President Clinton’s inauguration
Singing with her guru – Bharti’s recordings are still played on TV programs for Indians in the US
Through all this I continued singing. I learned singing in the US with a Pakistani teacher. I even made a cassette tape of songs with him in India, and in the US we would do a lot of programs for Indian TV. Even now, they’ll sometimes play those all programs.
Bharti’s talents as a henna artist got her invited to participate in President Clinton’s Inauguration in Washington D.C.
For ten years I did henna designs every year for the South Sea Port Diwali Mela (Fair) for the Association of Indians in America – New York Chapter. I was self taught. I would get invited to weddings in Manhattan to do henna. Then the Association sent me to Washington D.C. during President Clinton’s inauguration. Artists were invited from all over the USA. We stayed for four days in the Marriott, and I was set up in a big tent on the National Mall. Hundreds of people came to get henna designs from me.
Art at India Home
I like that we get to do art at india home. I signed up for the drawing class. I want to learn new things. I like coming there, I like doing the exercises. My husband likes it too, all the different activities and meeting people.
On facing the future
My husband is getting worse. My mother is getting deaf, and she needs a full time aide. But it’s okay. We are not going to take the money with us—whatever we have we will leave it here, so why not use it? It’s not about the money, it’s about getting help.
If I can even get a little bit of trained help that would be nice. But I will spend whatever money I have to take care of him.
Bharti Parikh often brings her husband with her on her visits to India Home. Her children, she wanted us to say, have all done well. Her daughter works in the financial sector. The baby with the hole in his heart, Ripal, who was the reason the couple moved to America, is now a well known pain management specialist. Her eldest son, Nehal, is a neonatologist at Cincinnati Children’s Hospital and researches prevention of neurodevelopmental disabilities in high-risk newborns.
India Home’s elders enact the aarthi worship ritual asking Ganesh, the elephant headed Hindu god,for intervention against obstruction
Lord Ganesh, the roly-poly, elephant-headed Hindu God is beloved of devotees not only across India, but also Nepal, Tibet and other Himalayan communities. As part of India Home’s on-going partnership with the Rubin Museum of Himalayan culture in Manhattan, our members, immigrants from India and Nepal presented a program for the Himalayan Heritage unit on their relationship with Ganesh.
The audience was diverse and was made up of people who ran the gamut from those who loved Himalayan culture and had visited India or Nepal several times, to curious folks who had wandered in out of a cold, rainy evening.
Rameshwor Koirala, a Nepali elder spoke of diverse traditions and memories
What they got were stories: childhood memories of waiting for hours in line to catch a glimpse of the most famous Ganesh statue in all of Bombay; a Nepali myth of Ganesh incarnated as a warrior God who breaks his tusk to throws it at the jeering moon; and surprising accounts of Tantric offerings of meat and whisky from Renu Shreshta, a member of the Newari community of Nepal.
Renu Shreshta, an immigrant elder from the Newari community in Nepal, related myths about Ganesh and her community’s unique rituals that include offerings of meat and whisky.
India Home elder Kaveri Amma sings a praise song to Lord Ganesha at the Rubin Museum event
Our elders also enacted the rituals of worship, wether it was the installation of a tiny statue of Ganesh, or the “visarjan” or immersion that is part of the cycle of the celebrations for Ganesh Chaturthi (Ganesh’s Birthday). Meera Venugopal, India Home’s staff explained how the clay body of the God animated by the ardor of worship is returned to nature by being immersed in moving water. Just as our bodies are returned to the elements through death, so too Ganesh is sent off on his journey, only to be welcomed again next year.
India Home elders enact workshop rituals celebrating Ganesh’s birthday at Rubin Museum
The program ended in true South Asian fashion with feasting–there were samosas, hot tea, and laddoos, beloved sweetmeat of Ganesh.
India Home’s elders chanted and played the dholak drum as they led the audience around the room in a playful farewell to Lord Ganesh
Rubin Museum’s Assistant Manager of Cultural Programs and Partnerships, Tashi Chodron, welcomed a full house to the program
Once again Rubin Museum’s audiences had an opportunity to experience a culture through the authentic medium of stories of lived experience. Our elders were thrilled to share their lives, perform and be seen as active, talented story-tellers and performers.
On April 19, 2017, India Home invited its members as well as residents of the Jackson Heights neighborhood in Queens to a movie night at the PS 69Q auditorium. The film that was shown was Bollywood tear-jerker “Neerja,” an award-winning film about the bravery and sacrifice of a young air hostess on board a Pan-Am flight that was hijacked in 1984. Our members enjoyed free samosas and chai before settling in to watch the film. Later, there was avid discussion about the film and the heroism of the young air hostess.
A few early birds waiting for the movie to start
This initiative to extend our programming to the evening, is part of our on-going efforts to combat the social isolation that seniors often endure. This is also a first step in doing more activities in Jackson Heights, an area with a large South Asian community.
Whenever I think of Holi and our seniors, rangeen is a word that comes to mind. In Hindi it means “colorful” — and it’s often applied to describe not just things, but attitudes. Someone is called rangeen because he or she is enthusiastic and excited about living, and a happy generous minded individual.
Our seniors love to dance
Our seniors love Holi and look forward to it every year. On March 13th as is customary, we decorated the center and brought colored powders for our seniors to smear on each other. This year we also had a singer who delighted our seniors by singing Bollywood songs of yesteryear. Our seniors danced, sang along, and anointed each other (and us) with color. They also shared the joy of the festival with their American friends at Sunnyside Community Services by making a presentation, and teaching them to dance the Garba, a Gujarati folk dance.
Many of them also shared memories of celebrating Holi in their past, some reaching all the way back 50-60 years to their childhood’s.
“Some pranksters would load up ox drawn carts with large drums filled with colored water and drive them around town. They would stop at strategic points and dowse passersby in red and green water, and the townspeople would retaliate by drenching the guys on the cart too. It was such great fun–I used to wait anxiously for the day to come.” Dinesh Patel.
India Home’s seniors taught their non-Indian friends to dance the garba, a Gujarati folk dance
A visitor joined in the fun
This year, we were also joined by Rachel Pardoe of the New York Community Trust, a grant giving organization. She too was promptly pulled into the festivities by our seniors. Remember what i said about them being rangeen?
“When I was first married and went to my husband’s home as a young bride, Holi was such a big deal. My husband and his brothers would pick me up and drop me screaming into a tank full of colored water.” Neeru Hanskoty.
The Indian elders gathered around the seminar table in the conference room at Fremont City’s Human Services office were retired engineers and accountants. Many had spent over 20 years in America. Some lived with their children and some didn’t. All of them loved the wide roads in their county, the considerate drivers who drove the buses they took everywhere, and the bi-weekly gatherings at their senior center. They were opinionated, knowledgeable and enthusiastically shared their ideas.
The elders had been invited by Ms. Asha Chandra, Program Manager and Communications Specialist at the City of Fremont to participate in a focus group being held to understand the challenges and issues that Indian seniors face. Ms. Chandra planned to share the data gathered with Fremont’s decision makers and said she planned to hold many more of these focus groups with various immigrant populations as part of the effort to get Fremont included in the list of World Health Organizations Age-Friendly cities.
California’s Indian population climbed 68 percent to 528,000 people from 2000 to 2010, making it by far the largest Asian Indian community in the U.S. For instance, in Fremont, Indian Americans make up 10.15 percent of the overall population of 203,415. I happened to be in California and was interested in learning how the state was dealing with this large and growing population of immigrants–especially its Indian senior citizens.
The focus group in Fremont was led by Mr. Krishnaswamy Narasimhan, a trained Community Ambassador with the city of Fremont and the Secretary of the Indo-American Seniors Association Fremont (INSAF).The Community Ambassador Program for Seniors (CAPS) is the City of Fremont’s award winning, nationally recognized effort that trains volunteer ambassadors to serve seniors in “their own communities, in their own language, within their own cultural norms, and does so where seniors live, worship, and socialize. ” Community Ambassadors like Mr. Narasimhan serve as a bridge between the formal social services agencies and their respective faith and cultural communities, like temples, gurdwaras and other places, and help seniors to locate senior services and programs in the City of Fremont.
An ideal for aging?
The focus group was also a visioning project–the elders in the room were asked to imagine an ideal scenario in three major areas: transportation; social participation and inclusion; and dementia support. It turned out their dreams were modest and easily attainable-the elders wanted a better transportation system like a shuttle service that took them to senior centers and other places where seniors congregate, more frequent stops, better paratransit options. They had the same challenges that our seniors face in New York–lack of good, frequent transportation or parking spaces, accessibility and problems with notification. When it came to social participation and inclusion, the seniors wished they had a bigger community center that brought together different activities under one roof. What surprised me, though, was the equivocal desire many of them expressed for opportunities to meet with other immigrant communities and experience their cultures. Their desire to “assimilate” with different cultures was strong, as was their need for activities where they could share their unique skill sets with others. Again, their challenges were similar to ones elders at India Home face–difficulties with language access, lack of awareness about local resources, a need for more social and intergenerational interaction, and more support from volunteers, especially to care givers of dementia patients.
Benefits of including immigrant elders
I came away from the focus group session thinking about the many challenges our fast-greying American cities face and all that remains to be done to solve these problems. By 2050 nearly one in five Americans (19%) will be an immigrant. By 2025, the immigrant, or foreign-born, share of the population will surpass the peak during the last great wave of immigration a century ago. As these diverse communities age we will need local, state and federal agencies to step up to meet their needs. Asking immigrant participants for their input and including them in the process as these cities plan for an age-friendly future is an important, necessary step and one I wish more cities would emulate.
A fit older man in a dapper suit suit turns to his wife and sings a few lines from a romantic song in Hindi, ” Life is nothing but your story and mine,” he croons. She laughs, almost shy, as he puts his arms around her. As he continues to speak of his love and their life together, they both begin to cry.
The couple in the video are Dinesh and Kusumben Parmar, active members of India Home. They are the stars in a video campaign created for AARP by Next Day Better, a media company that specializes in telling stories about Asian American communities.
His goal is two-fold says Ryan Letada, CEO and Co-Founder. On the one hand they want to bring immigrant Asian American and Pacific Islander stories and histories into the mainstream; on the other they want to “build intergenerational/inter-relationship understanding and empathy to strengthen and unify families.”
Next Day Better asked Dinesh and Kusumben to share their “love origin story” as a way to highlight their family’s history in America, a history that is shared by so many other immigrants to this country. Immigrants like Dinesh and Kusumben know that their stories go beyond mere romance to encompass an unconditional love that is expressed through courage, long struggle and sacrifice for the sake of family. Dinesh poignantly sums up the stories of so many new comers to America when he describes the couple’s life together as a ” journey of sacrifice, sorrow and happiness. ”
Watch the video for more on Dinesh and Kusumben’s poignant love story.
You’ve seen the advertisements around Valentine’s Day—the media and your timeline are probably filled with them. These images invariably feature young people—beautiful, tan, fit young people with perfect hair and dazzling teeth celebrating their love. These images are also rampantly ageist. You may not realize it, but this is the culture subtly telling you that everything associated with Valentine’s Day—love, beauty, passion, physical intimacy—all the beautiful human experiences somehow only belong to the young.
By reinforcing these stereotypical ideas of love, the media writes older adults out of the national consciousness, diminishes their real experiences of love and dehumanizes them. Perhaps, as Ashton Applewhite, author and anti-ageism advocate says, the time has come to “think critically about what age means in this society, and the forces at work behind depictions of older people as useless and pathetic. Shame can damage self-esteem and quality of life as much as externally imposed stereotyping.”
Love Transcends Age
Many of the seniors at India Home find themselves at a point where they are in a position to enjoy the companionship they have achieved over a lifetime spent together.
As Geeta put it, “Even today, after 45 years of marriage, we go everywhere, for walks, shopping and so on, together. He [her spouse, Shantilal] likes being with me.”
Sudha, said of her partner of 52 years, “We’ve learned to live together over the years. When one is angry, the other keeps quiet. Then when we cool down we talk about it, express our opinions.”
Listening to these veteran couples would help anyone who has ever been in a relationship identify and empathize with them and undo, what Applewhite calls, “the “otherness” that powers ageism…”
The truth is that love transcends age. This doesn’t need to be said, but older adults, whether they are 60 or 80 years old, feel love, longing, tenderness, friendship, passion–all the emotions that make us fully and gloriously human.
Giridhar, a quiet senior at our center, expressed his feelings about his relationship eloquently when he said, “Like the left leg and the right leg is needed to keep the body upright, my wife and I worked together to make our marriage work.”
Disrupting Notions of Love
So to celebrate this Valentine’s Day, we decided to disrupt the stereotypes that exclude older adults from this national celebration of love. Our Twitter campaign features vibrant, loving couples talking candidly about their long partnerships.
After all, love is love, no matter what age you feel you are.
by Wendy Cope
Today we are obliged to be romantic And think of yet another valentine. We know the rules and we are both pedantic: Today’s the day we have to be romantic.
Our love is old and sure, not new and frantic. You know I’m yours and I know you are mine. And saying that has made me feel romantic, My dearest love, my darling valentine. –
Every year, India Home plans a celebration for Diwali, one of the most important holidays for Hindus, Jains and Sikhs. This year, however, a group of seniors, spearheaded by our members Dinesh Parmar and Bharat Patel, took the lead to plan, execute and carry out the Diwali event. The celebration was held at the Gujarati Samaj Hall on the Horace Harding Expressway in Queens, a spacious venue with an excellent stage and sound system. The women’s committee donated traditional lamps and runners and “showed up early in the morning at 7 a.m.,” to decorate the place, Niruben Hansoty said.
Movers and shakers were seniors
Dinesh Parmar and Bharat Patel, the movers and shakers behind the event, welcomed the audience with a traditional lamp lighting ceremony or deep pragatya. Then the members honored India Home’s Executive Director, Dr. Vasundhara Kalasapudi, Deputy Director, Lakshman Kalasapudi and other staff of India Home, the President of the Gujarati Sama (who donated the space) and Mukesh Mehta, a Board Member of India Home.
Bharat Patel (left) and Dinesh Parmar (right)
Dr.Vasundhara Kalasapudi, E.D., India Home
The band played on
After the speeches, it was time for fun. Well known New Jersey-based singer Varsha Joshi and her band sang Bollywood hits and Gujarati traditional songs. Our seniors got down on the dance floor, dancing the garba and other folk dances with vigor, breaking only for a fabulous lunch from Usha Foods.
Our members love to dance the vigorous Garba
New jersey-based singer Varsha Joshi entertained the audience
India Home members come from all different faiths and religions and we celebrate a lot of religious and cultural holidays. We celebrated Sikhism by holding an event for Guru Nanak Gurpurub on Monday, November 21st. Gurpurub generally falls in Autumn and is considered a most sacred festival by Sikhs because it honors the birthday of Guru Nanak. Guru Nanak is the first of the 10 Sikh gurus or spiritual teachers.
Mr. Raghubir Bhatti, our active and jovial member, took the lead to present a short informative program on Gurpurub. He spoke about the major principles of the Sikh faith and emphasized its inclusiveness. Sikhs make no distinctions among people based on caste, class or gender. Its tenets are firmly rooted in the belief that all people are equal and preach that people of different races, religions, or sex are all the same in the eyes of God. The religion believes in the full equality of men and women. Women can participate in any religious event or perform any Sikh ceremony or lead the congregation in prayer. And since no birthday celebration is complete without something sweet, our seniors shared fruit and ladoos, an Indian sweet.